Update

Riley is doing really well and continuing to show improvement little by little. She has a cold right now but we are treating it with antibiotics at home (not in the intensive care unit at the hospital!) She has her two bottom teeth now and one of the top ones looks like it will be here soon & since she is teething she is chewing on everything and drooling every where!
We got some good news from her doctor the other day - they want Riley to take a Barium swallow test to see if she is swallowing and learning to protect her airway. She has never done this before for fear that she would aspirate any fluid put in her mouth but her doctor feels like she has made enough progress that he wants to go ahead with the test. We are a little nervous since we are not sure how well she is protecting her air way there is a chance the fluid could go into her lungs but if she passes the test it will be a big step forward toward eventually getting her trach out - but as of now her doctors all say that is still a LONG way off. So pray for amazing result for her swallow test and also for wisdom for us on what to do next with her. We are trying to decide what our best options are as far as seeking further testing and treatment. We have pretty much exhausted most of our research options in town and we are looking to take her to maybe Gainesville or Philadelphia - please just pray for guidance for us on where to go from here.

Much Love,
The Turner Family