Update

Riley is doing really well and we are so pleased with the progress that she has been making lately. At the beginning of May she went into the hospital for a few days to have ear tubes put in and for us to get in home ventilator training (she is on a ventilator now at nighttime). The surgery went really well and we can tell a huge difference in her hearing now because of the tubes. Also her lungs are much healthier now because of the extra support she is getting at night from the ventilator. While she was in the O.R. for her surgery, her ENT also did a scope to see how her trachea was looking and discovered that her tonsils are about the size of Texas so we will more than likely have them removed in the next few months. He also found that there is alot of irritation and damage from aspiration and/or reflux along her trachia. We are discussing our options for how to best treat the problems that his scope found and we would really appreciate your prayers for healing for Riley's trachea and improved strength in her swallow reflex to help prevent any further damage. While we weren't happy about what the bronchoscopy found at least we know now so we can make every effort to help her get better. But all in all if was a really I guess you could say 'successful' hospital stay. And just a side note . . . The staff at Wolfson's PICU is absolutely amazing! We love you guys so much and we are so thankful for all that you do!!!!!!! Especially all of the Respiratory Therapists, y'all are awesome. :)

Riley is also making alot of progress with her physical therapy. She touched her toes for the first time about two weeks ago! I know that this seems like a fairly small, normal kind of thing but for Riley it means that she has the arm strength to lift up, reach out, and extended her arm, the leg strength to move, lift up, and bend her leg, and the core strength to bring her arm and leg together so she can play with her toes. . . . . THAT IS HUGE FOR HER!!!!!!!!!!! We never cease to be amazed at the little miracles that keep stacking up in her life. Nothing makes me happier than to see her physical therapist freak out from week to week as Riley continues to improve. Riley is moving alot more just in general - waving and giving high-fives, reaching for toys, and she laughed the other day it was silent of course but still an adorable and a very infectious laugh. :)

Thanks for all your continued love and support. We are so blessed to have amazing people like you along side us during all of this.

Much Love,
The Turners