A much needed update

Hey Guys. Sorry we haven't posted anything in a while, life gets kinda crazy at times but here is a much need update on Riley. She has been doing really well. With the cold and flu season it was difficult keeping her healthy so we are glad that the warm weather is back. She has a little cold right now but is doing pretty well and will hopefully be over it soon. We have had some issues with ear infections lately so her ENT is going to put tubes in her ears sometime this month. We don't have the date for the surgery just yet but she will also have her g/j-tube replaced when she goes into the O.R. for the ear tubes. Also, Riley's pulmonologist wants to start her on night time ventilation. At first we thought this might be somewhat of a step backwards, but her doctors think this will be really good for her to help keep her lungs open and healthier while allowing Riley have more energy during the day by helping her breath a little easier at night. When she is in the hospital for her surgery we are also going to have training and get set up for her to be on the nighttime ventilation. So even though we are not excited about having to spend a few days in the hospital, it will be good for Riley to get a little "tune up" so to speak.

She is getting so big and is a lot of fun. She is unable to talk or make any noise because of her trach but she has learned how to make little squeaking noises with her tongue and she is so funny. She will tilt her head and chirp at you for hours like she is having a whole conversation with you. She is continuing to make progress with her physical therapy little by little and we have started speech therapy this month to help with her oral motor skills. She has come so far since a year ago and we look forward to the improvements we will see from these new changes over the next few months.