Riley is doing really well, she has been home with no hospital visits for over a month now. Her pneumonia is finally going away but now her doctor thinks she might have an infection in her colon from being on antibiotics for too long. Despite all the colds and infections - she is doing well and she is continuing to make progress. She has been gaining weight, not as much as we would like, but still gaining which is great. Her overall strength and tone is slowly improving as well. Her control and strength in her hips and legs has gotten much better and we are excited to see her moving her legs in ways she has been unable to until now. She has a great disposition and is always smiling (and her new thing is to stick her tongue out when she gets really excited). Inch by inch she is steadily getting better and we are so encouraged by & just amazed at God's daily miracles in her life. Even little things like a cough or sucking her thumb are simply amazing for her and it seems like every week she is doing a little more than she did the week before. The areas were we really need to see improvement for her are her neck, upper arms, and mouth. She is extremely weak in her neck, shoulders, & upper arms and has shown little improvement in these areas. We are praying for strength and muscle development so that she can support her head and have more controlled movement in her arms. Also, we are still praying and believing for her to begin protecting her own airway by swallowing, gaging, and sucking. Thank you so much for your love and prayers for sweet little Riley.
We love you and are so thankful for all of you!
1 comment:
Josh, thanks for sharing w/me about the family @ the flex event, Jane and I put riley and the family on our prayer board and we will continue to pray for you daily as well as quite a few friends that I've shared your situation with.
We don't know you that well, but we Love you.
Take care my brother... matt and jane kowalski
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