Riley Update

Riley has been doing great lately! :) She has a cold right now but the amazing thing is we are still at home! Normally when she is sick we end up in the hospital for at least a week so it is great that she is doing well despite a respiratory infection. Her pulmonologist said that he is really impressed with the improvements she has made in her respiratory strength. Also, she is tolerating her new g/j tube really well. We have been able to move her and do alot more therapy with her without the fear of making her spit up because her belly is too full. But we are still having issues with her refluxing and vomiting (unrelated to feeds) - so we are hoping and praying she will grow out of this so that we don't end up having to have another surgery. The amount of progress that Riley has made so far is nothing sort of miraculous but she definitely still has a long way to go. The biggest things we are praying for right now are her respiratory infection, her swallow reflex, and her reflux issues. Thank you for all of your love and prayers!